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  1. #1
    Junior Member HilaryS's Avatar
    Join Date
    Nov 2008

    Dopa-Responsive Dystonia/Juvenile Parkinson's ?

    For a few years now, my doctor has been telling me that I have dopa-responsive dystonia. But recently i have been having more symptoms (same ones, but more often) and we had to increase my medication (sinement) so she is starting to think that I may have Juvenile Parkinson's (im 17).

    Do you know anyone with these conditions? what do they do when their symptoms are bad

  2. #2
    It's also getting worse with age when it's just DRD. A DaTSCAN allows to decide between YOPD and DRD. A genetic analysis in many cases shows specific mutations, which are responsible for DRD. There is also a seven times higher Risc to get Parkinsons if you have DRD. But normaly this will happen 60+

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